Billi-Joh’s story: diagnosed with RHD aged eight

Billi-Joh’s story: diagnosed with RHD aged eight

Meet Billi-Joh. She’s 15 years old, and lives in a remote Aboriginal community at the top of Western Australia. Like many teenagers, her mum says that she’s still finding her place in the world. What sets her apart from her peers is that she is navigating...
Carol’s Story: Losing A Parent To RHD

Carol’s Story: Losing A Parent To RHD

Carol Michie’s mother Elizabeth was one of eight siblings born on East Arrernte (Aranda) land, near Alice Springs. After being diagnosed with rheumatic heart disease at ten, Elizabeth had to leave country and her family for a large chunk of her childhood so she could...
Margie’s Story: Parent To A Child With ARF

Margie’s Story: Parent To A Child With ARF

When Liana complained of a sore foot and showed signs of a fever, her mum Margie rushed her to hospital. An X-ray of her foot revealed no obvious injury, so she was sent home and advised to take painkillers. But Margie persisted. She took Liana to her local clinic a...
Sarah’s Story: Living With RHD

Sarah’s Story: Living With RHD

At 12 years of age, Sarah* was flown out of her community after a week of feeling unwell, breathless and with rapidly beating heart. She was diagnosed with severe rheumatic heart disease. Sarah’s RHD was so advanced that she needed open heart surgery on two of the...