Although that operation has prolonged her life, Sarah and her family live with the consequences of RHD every day. She must be constantly vigilant for signs of disease recurrence. Every 28 days she must have a painful antibiotic injection to prevent a recurrence of acute rheumatic fever. Every six months she must travel six hours for specialist follow up and it is likely that she will need further surgery in the future.
A great sadness of Sarah’s story is that all of this could have been prevented. Sarah had presented to hospital twice in the previous two years with signs of rheumatic fever which weren’t identified or acted on. Improving the social determinants of health in Aboriginal communities and raising awareness among the health sector and the wider community are crucial to prevent this happening to another child.
*Name has been changed to protect identity