Our Stories

The consequences of rheumatic heart disease aren’t limited to those living with the disease, they’re felt by entire communities. These are their stories of courage, persistence and hope.

Carol's story: losing a parent to RHD

Carol Michie lost her mother when she was just ten years old to RHD. More than four decades later, she says she cannot believe the disease continues to take the lives of and affect “so many of our mob”.

Margie's Story: Parent to a child with ARF

Liana was only 8 years old when she was diagnosed with rheumatic heart disease. She’s come to terms with her diagnosis – and the fact that she’ll need to have monthly injections until she’s 21 – but it was a hard thing to comprehend being so young.

Sarah's story: living with RHD

At 12 years of age, Sarah* was flown out of her community after a week of feeling unwell, breathless and with a rapidly beating heart. She was diagnosed with severe rheumatic heart disease. Sarah’s RHD was so advanced that she needed open heart surgery on two of the valves in her heart.