Our Stories

The consequences of rheumatic heart disease aren’t limited to those living with the disease, they’re felt by entire communities. These are their stories of courage, persistence and hope.

A mother's story of RHD

Liana was only 8 years old when she was diagnosed with rheumatic heart disease. She’s come to terms with her diagnosis – and the fact that she’ll need to have monthly injections until she’s 21 – but it was a hard thing to comprehend being so young.

Sarah's story

At 12 years of age, Sarah* was flown out of her community after a week of feeling unwell, breathless and with a rapidly beating heart. She was diagnosed with severe rheumatic heart disease. Sarah’s RHD was so advanced that she needed open heart surgery on two of the valves in her heart.